This post is brought to you in partnership with Arniston Bay, a lovely crisp white, a sauvignon blanc, I think, but then again I don't really care because it tastes damn good, especially after chugging the first glass Amy Winehouse-stylee. I think I'm ready for my third.
It's nearly the 3rd of January and I still haven't had my Christmas dinner. I was so poorly with a cold over Christmas that I couldn't eat anything never mind cook it. Capt Scarlet got the cold soon after I did and he didn't want anything either. We decided to have our lovely leg of pork for New Year's Day instead (no turkey for us, we do things different at Casa di Calamity of course).
So, New Year's Eve rolls around CJ and Capt S are feeling a bit better and the pork is nicely defrosting in the fridge. CJ is having her dialysis, Capt S is moseying around town trying to avoid the mayhem at the Next sale when he gets a call from my Dad. He's feeling really ill, could we pop round as he thinks he needs some help.
We arrive to find that he can barely breathe and has chest pains. He's called the doctor and arranged for a house call but the doctor calls back to say that he might not be able to come. Excuse me? What the fuck is that supposed to mean? I call the surgery and they tell me that another doctor will come instead but they can't tell me when, he's already on his rounds. Dad's feeling really bad so I dial 999 and an ambulance is soon on its way.
According to the Number 27 Bus Principle (you know, you don't see one for hours and then 5 arrive at once) the doctor arrives at the same time as the ambulance and I thought we were going to have Gladstone bags at dawn on the drive but they eventually cooperated and pronounced that Dad had pneumonia and possibly a heart attack and whisked him off to hospital.
I should add at this point that my 73-year old Dad is my dotty, doddery, sweet-but-with-a-mercurial-temper, frail 76-year old Mum's carer. She can't be left alone for more than a couple of hours at a time, it's New Year's Eve and no-one in the medical/caring profession actually gives a shit about our predicament. Nope too many parties going on tonight and tomorrow's a bank holiday.
I've been living with her since New Year's Eve, only a matter of 3 days but it feels like a lifetime. She's missing Dad terribly and every morning I have to explain where he is and deal with the floods of tears that follow as she's convinced he's not coming home again. Only someone with a parent with dementia can really relate to how bad things have been. If I was able to care for her in my own home it would be one thing but I'm living out of a carrier bag (all the suitcases are in the loft). I managed to call the Social Services today to see if we can get some respite care for Mum while Dad's in hospital. They're supposedly treating us as an emergency referral ... they'll call back in a couple of days.
I've never stayed at my parent's house before, they moved out of my childhood home about about 17 years ago to downsize to a pokey little bungalow. I always dreaded the thought of staying because they live on the edge of some woodland and their 8 legged visitors should be seen to be believed - those 'little' buggers look like they're made out of Twiglets and you can hear them clicking when they walk across the carpet. I am mortally afraid of spiders so I can tell it's taken some cojones to sleep there.
To make matters worse my parents sleep in separate rooms due to Mum's illness, and my Dad's room is never heated and it is heaving with damp and mildew. It's absolutely awful and I suspect a large contributor to his many chest infections. I scrubbed it from top to bottom today, but it's only one room in a damp house, granted the worst, but there is far more scrubbing to be done.
I get to spend the night in my own bed tonight because Captain Scarlet is on watch - I have to be up early to head out to dialysis in the morning. Poor guy he's in charge of feeding and entertaining Mum - I can't make her eat anything apart from bread and jam and the occasional slice of cake. Her 'meal' times are about 2 hours too early for mine so I've not had a proper meal myself for several days, I'm surviving on tea and cake the same as Mum.
Capt S went back to work today but has taken tomorrow off so I can dialyse, I can take over again tomorrow night, my aunt can cover Friday because I need to dialyse again Saturday morning, back to me on Saturday afternoon but I'm supposed to go back to work on Monday and am in despair over what to do if my Dad isn't home by then (and let's bear in mind a 73-year old recovering from pneumonia isn't going to be fit for much himself). I feel so guilty for missing my home, my bed, my husband. I hate this. I'm only a mile from home but I may as well be on the Moon. It's so lonely, and thankless, and worrying, and ...
PS: I've had a sore throat for 2 weeks, I saw our practice nurse today and she says it's viral, there's no treatment apart from rest and plenty of fluids and maybe some honey & lemon. I'm screwed - I'm a diabetic kidney patient so honey and fluid (apart from some medicinal wine) are a luxury I can't afford. And I still have a 4 pound leg roast and all the trimmings that needs eating.
2 January 2008
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14 Whip Crack-away!:
I'm disgusted by the lack of help you are receiving, but sadly not surprised. I'm disgusted that I have become so unsurprised. Is this really the level of service we should expect?
CJ, I wish you and your Dad a very speedy recovery. I hope your Mum and Dad get the level of support they need when he is out of hospital.
I'm so sorry about all of this. I know some of what you're dealing with and wish I had words of wisdom. I hope social services gets in there very soon.
{{Hug}} Try to look after yourself as best you can. I'm really glad you have others to help you in this time.
CJ, sending you ((((HUGS)))) right now and wishing your dad a speedy recovery.
Family are precious I know and they are fortunate to have such a loving, caring daughter.
You know where I am!
Dxxx
Well, that's all just pretty crappy! You poor things, when it rains it pours, eh? Wishing your dad a very speedy recovery, and hoping maybe the system steps up the support!!!
Hi, I'm here thanks to Mr Man's Wife who includes a link to your blog.
I have a brace of mothers/mother-in-laws both with dementia, neither likes the other, two children who never get out because I'm forever dashing between the mothers, washing, ironing, cleaning, worrying about money owing to disappeared job etc Yes, Christmas & New Year were pretty crappy too, exacerbated by the happy clappy "Have a fabby Christmas" (by the way we're closed for 2 weeks) notices from Home Care et al (we can manage just about, but what about all the legions who can't? - like your parents for starters) BUT I'm not living out of a bag, I DON'T have to have dialysis and juggle my own health too. HOW ON EARTH DO YOU MANAGE & STAY AS SANE AS YOU SEEM TO BE??!! Have you eaten yet?
Every carer blog I ever read tells a tale of total lack of support, from other family (too busy), to "services" who are completely inefficient, unaccountable, faceless, and staffed with a disproportionate of "more than my job's worth" incompetents. (Thankfully, there are a few scattered here and there who really try to do what they can - and what a difference it makes!)
I have always tried to teach the kids to hold to what their conscience dictates, never mind that they are thought to be "soft" for helping out - whatever the job is - but I do wonder round about 3 in the morning if I have got it all wrong...
Brilliantly written, do keep it up if you can - and I hope so much that you do get the help you and your parents need. And not just "minders". They're pretty dreadful too. But people who are really sensitive to their needs - who keep them together, so that your Mum isn't in tears for missing your Dad.
As for stubborn colds, not sure how these are re diabetes etc - but recommend SAMBUCOL (elderberry prep better than echinacea for flu) and Swedish Bitters. Think you can get both by post from Victoria Health in London - and they have a pharmacist on call who can advise on taking vitamin supplements etc. Not quite a Sauvignon Blanc but fantastic at building up auto-immune system. Good luck. TX PS. Jam sandwiches are a whole lot better than nothing. Whatever it takes, to keep your Mum eating is fine. Would she drink hot chocolate with whole milk/custard & jelly? We kept Mum going for weeks with that. "Oaty" breakfasts with maple syrup/fruit etc are also quite good - if sugar isn't a problem
Oh Lor, this is terribol! I am sendin yu lots ov Bear hugs from me an all the Bears heer. Dilly sends an eer hug. (I kno, but it's best not to arsk.)
Mummy has had that bad bug that's goin rownd, so she hassent been up to much feastin either, but luckily it dident hit her till arfter Crismoss at leest.
I do hope yu get better. Leest it is startin to get a bit lighter now I spoze.... not shor wat else to say! Cud yu mannidge a choklit peanut? I cud send sum.
I luvd yor Crismos card. Mummy sez they all hav to come down tomorro but I want to leev yors up.
Beary hugs,
:@]
I came to your blog via mr mans wife. I could say -aren't you having a crap time? but you already know that you are. And, having been a carer for a long time (for 2 different people), I'm not surprised at the story about your parents.
A comment and a question for you...
Comment - I love your writing style, wit and comment. Much better than average blogland quality!
Question - Why, if you're British & proud of it, have you an American pseudonym & a Doris Day themed blog? ...Just asking!
I wish your dad a quick & complete recovery, and I hope (although I'm not very optimistic about a successful outcome to this hope) that everything gets sorted out for you before Monday morning.
Best wishes!
Bloody hell, CJ. When all this is over, you need a weekend in a luxury hotel.
Sending many healing and positive vibes for all who needs 'em.
Puss
Mrs Woman,
Social Services eventually called me back on Thursday night to offer Mum a bed in a home about 40 miles away. No further comment necessary really is there? Thanks for your support.
Echomouse,
Thank you dear, I know you went through the mill too. Hugs back atcha.
Mrs Nesbitt,
Thank you, and thanks for your email, your offer means a lot to me.
Amy,
Thanks hun. x
Tilly,
Welcome, nice to see another friendly face. Thanks for your words of comfort and support.
Bob,
Hello poppet. I hope Mummy gets better soon - she's had a run of illness lately hasn't she? I selected those Christmas cards with you in mind :-) Instead of a chocolate peanut how about a sherbet fountain?
Robert,
Hello and welcome. Thanks for the compliment, you're too kind. As for the Brit vs Doris thing all I can say is that my parents used to call me Calamity Jane as kid. Jane is actually my name and I was a tomboy, always injuring myself - standing on nails, skewering my hand while trying to pierce a conker, skidding along the pavement on my cheek after trying to be Evel Knievel on my scooter. The moniker just seems to fit me so I carried it through as much as possible. Just you wait until I've finally mastered web page design ...
Also, I work with American servicemen, I hear every day a lot of negativity about life in Britain from them to the point where it is downright rude. I declare my pride in my heritage whenever I can. Never really considered the conflict before - I used to be known as Some Crazy Brit when I first discovered blogging but lost my passwords:-)
Puss,
Thank you pet. I had night in my own bed with Capt S by my side last night - better than any hotel I've stayed in.
Hi there,
Some {{{{Fluffy}}}} hugs from my heart to yours.
I hope things are improving with your parents.
I picked up your link from mr mans wife too!
maz x
Dilly be vewy worreed bowt Calamity Jane.
Hope feel better soon.
Wish livd neer!
Dilly send hugs,
¬"
So...have you had a happy new year?
(Pause for laughter - not a sausage)
HUGS and if I can do anything practical to help from half a planet away, just tell me, Ok?
Your drive-by hug on my blog was truly appreciated BTW. I don't know how you find the time, considering how hectic things are for you.
More Hugs, Zoe
CJ,
I'm worreed bowt yu! But I sor yu abowt on another blog, so I hope that meens yor gettin better. Thank yu fer the visit! Hav yu had that big roast yet? We just mayde banarnana cayke this eevnin. If yu livd neerby I'd bring sum rownd. We cud eat it in bowls on our laps wiv creem an a spoon an watch The Simpsons..
:@D
Just found your blog CJ - I guess your 2008 must have been kinda busy - very much hope you are blogging somewhere, cos you have a rare talent for this, and through it you can find so much for yourself, as well as the sharing. Be kind to yourself. Be gentle. Hope I find you again. Hugs. x
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